brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:42:02 GMT -5
Feedback/wisdom/travel tips?
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:35:35 GMT -5
You can get a non "real" (can't be used at TSA checkpoints) gal CA state ID that will qualify you from the DMV (prepare for a full day waiting if you don't get there at least 30 min before ing time). If you previously had a CA ID or Dr Lic, they can look you up, or if you have a pay stub from a CA employer and can provide a CA mailing address, you're in, with a temp provided on the spot with a 2 week turnaround for the card to the mailing address you provided. Cost: $30. .
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:32:26 GMT -5
confirmed 3/1/1028
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:26:59 GMT -5
Anyone screened or done a study here?
Any travel or other tips?
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:24:36 GMT -5
relaxing utube meditation music works!
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 14:12:51 GMT -5
I recently attended a screening and signed the required forms (including consent forms data and DNA sharing info) during the informed consent conference, then, once I gave samples and went through the second interview and learned more about how the drug worked and the AE's involved, decided it was not for me.
Everything happened as they requested.
I was supposed to receive copies of the paperwork right after signing, which included the study name/number/internal contacts/IRB involved, and who to write to should I choose to change my consent status, but as soon as I informed them that it was not a good fit, they treated me like riff raff and shooed me out...without giving me copies of the signed paperwork I am entitled to. I went back to retrieve it (and was totally polite), and they pretended not to know who I was or who the alleged study coordinator was and threatened to call security.
In addition to being very sketchy behavior, I am concerned (pretty much convinced after their actions) they will market my DNA and other info for profit using the previous consent, which I do NOT agree to.
HAS THIS HAPPENED TO ANYONE ELSE?
All I have are my personal notes, without the particulars. I prefer to settle this peacefully without hiring an attorney. Is there a single IRB for the LA?Orange County, CA area?
How can I remedy this and withdraw my consent, as is my right?
Thank you.
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Apr 10, 2018 13:34:13 GMT -5
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 29, 2018 1:52:38 GMT -5
In to get a CA ID, you need a pay stub and an address. So, if you've got a pay stub from a previous study and a friend/relative willing to write you a rent receipt, this may just fly...
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 29, 2018 1:50:33 GMT -5
FYI-- They will not take anyone who is currently enrolled in another study, even if it's just follow-ups with no dosing for over 30 days.
The total washout for Celerion is 30 days PAST THE LAST study visit. Period.
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 29, 2018 1:46:47 GMT -5
What is the purpose of this request? Are you seeking input for possibilities, or are these situations already enacted?
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 25, 2018 15:34:06 GMT -5
I've not done a lot of studies, but I hope to do more because I have dreams this money will help me create.
This is an odd demographic...a lot like being in the filming industry: Everyone is "expendable freelance." You audition (screen) and hope for the best, but there's also politics and sponsors (producers/directors) that keep changing their minds, and someone willing to give a BJ to whoever is calling the shots. You can do everything "right" screen well, and still not get in, or get in and then have soing go south that has nothing to do with you or your qualifications.
I have my vitals and basic blood work done before each screen to be sure I'm not wasting money on travel. Everything can come up perfect for both sets, then you get a call that the study doc found some detail that inspired them not to choose you, you know it's not substantive, but it's their call.
When you put all of your hope into one thing and it doesn't work out, it's easy to become discouraged.
This is a very part-time way to make money with at least a 30-day hiatus on between. It is not "easy" and is physically and emotionally unsafe to make this your only source of income, because of the objectification, and there are biochemical side effects of the drugs and being confined inside that effect emotions as well.
They are paying us to use our bodies...to generate profits way beyond what we will ever see, but still more per day than most "regular jobs" and like a lot of other "jobs" it can be pretty Dickensian in many ways, especially in terms of human "community" and feeling appreciated (with the exception of this forum), and some friendships we cultivate along the way.
Any "job" can feel soul-less unless we find larger meaning/connection. "Contributing to humanity" is a marketing concept this work, but it's really about profit (for them and for us), so if this is your only focus, it wears thin pretty quickly, especially after the 25th straight stick in a day by someone who can barely tie their shoes, much less find a vein.
A job is not a summation of who we are as a human being. We are much much more than "just another lab rat." We are real people of many facets, talents, hopes, and dreams, and like other real people, we have our ups and downs, which can lead to growth as we explore the deeper roots of our dissatisfaction/ depression (for which there are studies as well, but the meds are crap with awful side effects, and "mental illness" will disqualify you from many "healthy" studies), so tread carefully.
Feeling depressed/dissatisfied is a temporary attention-getter to motivate us to explore perspectives and change things up. Depression is defined literally as an area of ground that is lower then the rest around it (a "rut"), created by walking the same ground repeatedly (like a habit), which can be comforting till it becomes restrictive. Like any path or rut, you can (literally and metaphorically) step over, climb out, walk around it, fill it in/fix it, or create/find a new path, depending on who we look at it.
We need income, and we need meaning and connection. If we could do anything and be paid for it, what might that be? Try to consider 3 ideas and notice how they feel to you. Is there soing you've always been interested in? Soing you feel great about?
Find a profession, need, or cause you can believe in and find a "job" within it, create a service, or volunteer to get to know it. Is there soing you could help with and charge by the hour? If others are doing soing that appeals to you, learn HOW they're making it work, and see how you could make it work for you. Do you love kids, pets, care about the homeless, hungry, the oppressed? Do you love art, music, build things, garden, hike, or help people in general? Can you blog or stream about soing you love? Is there soing you've always wanted to try or learn about?
There are so many ways to "survive," and we cannot do this full time forever. We need to balance this with other ways to earn, stay healthy physically and emotionally, and cultivate soing to lift our Spirits, even if it's taking a walk to breathe the fresh air, feel the sunshine on our skin, and observe and connect with the world around us.
Nature is a huge uplift for me, because no matter what humans do, nature keeps showing us how to be resilient, stay grounded, and keep growing...and that we are a part of nature and connected to each other. Nature literally provides what's needed for everything on the planet, like an artist, constantly creating recycling and adapting a work in progress. Being outdoors effects us biochemically, supporting our mental and physical health, and I simply can't walk without seeing soing beautiful and feeling a sens of awe, even in urban settings, and hiking with a friend or meetup group is another great way to connect. : )
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 24, 2018 16:34:13 GMT -5
Since only moderators can add new threads...perhaps it would be valuable to add a thread to the "Healthy" and "Patient" areas to address "suggestions for new threads" so they could be easy to find, clear, and centrally located so moderators could check them and make the additions in an easy and timely manner? There is valuable safety and other info that would be beneficial to share. Here is info from an additional thread on this subject from the "general" area regarding the addition of Spaulding West Bend: It's still dead to the rest of us who try to view it: Read more: jalr.proboards.com/board/45/spaulding-clinical-west-bend-wi#ixzz5AhhgGwENHere's the error message: Oops, there was an error! The board you are trying to access could not be found.
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 24, 2018 16:28:09 GMT -5
There are also some smaller venues that seem to be flying under the radar in various locations that would be valuable to add, depending on what side of the fence participants here are sitting on. Thank you.
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 24, 2018 16:24:41 GMT -5
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brat
Junior Member
I'm alive because of needed exp procedures as a child and glad to be healthy.
Posts: 64
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Post by brat on Mar 24, 2018 16:16:27 GMT -5
This is NOT the only facility doing this and it is very important to share this info, so other Rats can make choices with all the info.
There are also concerns about not being paid as agreed for some facilities.
Can we please expand the boards to include more facilities so we can share this info as a public service? I've asked, and have not received a reply from the moderators.
Thank you.
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