|
Post by fl2014ta on Aug 22, 2023 14:32:22 GMT -5
s-0-m-e-t-h-i-n-g d-i-s-c-o-n-t-i-n-u-e-d
|
|
|
Post by fl2014ta on Aug 22, 2023 14:30:45 GMT -5
they were active with studies a few months ago and would call me for vaccine (but I don't do those types of studies). The best thing is to unfortunately hound them with a call every week or two. they are pretty good at remembering those who call frequently and also call you if soing fits your profile/demographic. The last one I was inquiring about eventually fell off the board and when I first called about it they said they would waitlist me but I never heard back so I assume it went away (disued recruitment). Regards,
|
|
|
Post by fl2014ta on Jul 21, 2023 22:15:53 GMT -5
fwiw, I did a trial several years back at in CT. It was within 30-60 days after and I screened elsewhere, in Baltimore. It came up that I was enrolled this-and-this day and in my this-and-this week after inpatient. I told Baltimore peeps what it was about, and I didn't dose. However, because I participated and the 60-day sponsor requirement was not up, guess what.
Just for the record, I would be curious to know where the intrastate exclusion was printed.
|
|
|
Post by fl2014ta on Aug 3, 2021 17:35:30 GMT -5
Thank you. Your supportive comment is appreciated . . . well I stayed and the study was over $4K. But I had two awesome roommates after miss blazing b*t*h left on day 5. One invited me to CT to visit if I am looking for housing up there (which I am) and another was so sweet and a fun person to chit chat with. And very understanding so . . . I think I did the right thing. The second one said that I should never EVER let anyone be the driving factor with study money. If anything, I know better now and am going to be the flaming roomie from H*LL if anyone else gives me any crap. I honestly considered asking the facility to not admit her going forward because she has some psychotic behavior. I think she would have been a prime candidate for a schizophrenia study but, alas, they admitted her for a healthy study cohort. This might be a blessing in disguise if I find a place in CT. Again, thanks for taking the time to read all this and your kind note. Also if you are in NJ and in need of a study, they are screening for an opiod (recreational use) thing that pays 7K or soing for a short block of two inpatient sessions. let me know.
|
|
|
Post by fl2014ta on Jul 19, 2021 16:37:05 GMT -5
"everything she ed" equals everything she o r d e r e d soing equals s o m e t h i n g
|
|
|
Post by fl2014ta on Jul 19, 2021 16:15:32 GMT -5
(long story) currently in a local study. supposed to be 22 days. The facility knows me and I have done other studies here recently. Except I have noticed lately that more instigative types of personalities are being admitted. This is a problem especially when there is never any room to switch beds or studies are lengthy.
Checked in, no other room occupant. Then they admitted someone who was very defensive and persnickety. She never was there before so I showed her around (in absence of anyone really explaining anything to a newcomer). Next day, she has a fit because her admission labs came back with bad levels and so she had to leave. She said she spent a considerable amount getting there. But anyway, se la vie. Ok . . . day two:
someone is doing SAGE (Sad) and is on minus one, first day. I already went through my SAGE (Mad) first dosing day that had a lot of labs, draws, etc. very frequently from the beginning. Anyway, after my day one this next party comes in and is admitted to my room. Except she is doing a diferent cohort and has a hectic next day until after 1 am with the whole head wrap thing, hooked up to monitor, etc. Well, they do not show her aroundd. So right away she gets contentious almost from as soon as she is admitted. She needs towels; then they did not give her the sockie thingys. She wants to know why she did not get a big clear plastic bag for her linens (I brought mine from home). Then she wants to know when is she getting her breakfast. Then how does she get a fork and who gives out food without utensils? (She starts acting invalid because she's hooked up to a monitor. Yet, she has no problem getting to the bathroom.)
When she first came in, being a good neighbor, I again showed her around. I showed her everything . . . bathrooms, utensils, snack rooms, patient helper stations, walked her through the whole place so she would know. Also the blood draw room and the kitchen areas. I also lent her a new small bottle of mouthwash when she complained that she forgot hers. (I brought a different product for my gums.) Ok, I would say I went above and beyond to be helpful to a "newbie".
Then she complained about dust bunnies under her bed. (I get it. They discharge and no sooner admit into the bed ater a linen change. When things are busy that's how it goes around here.) So she makes the patient assistant come and get her a bucket of water, mop, wipes, etc. because she spilled juice on the floor and her bed and because she's hooked up to the laptop, she expects the patient person who gets snacks and meals out, to clean. Also she complains how the plce is "filthy" and especially "with all this going on" (Covid). I mean it was drama queen blended with space cadet (or commander).
Her labs and procedures mean thelight is blasting from the ceiling until after 1 am and I am being awakened through all her "stuff". they were supposed to put her in a room with other people doing her types of procedures but all of sudden there is no room, so they keep her in my room. So now she has her halter going off several times a night. She claims she doesn't hear it. She complains about ridiculous things like because she has to have the door to get her laptop cart and monitor out the room to go down the hall, she leaves the door wide overnight. people in the hallway are talking late at night and she is complaining, blurting out comments when it's late. Yet she has no compunction about being agitated and her events disturbing anyone else and I did not complain about it at all.
The next morning it ued. . . . how she will be so happy when blah blah blah and this place is too much and this is so badly run and etc. yet, she would say she has no problem doing and following rules. (Except apparently being non confrontational does not fit in that agenda.) So I basically told her one thing: the only thing she is there for is to be available and accessible for her procedures. Meaning: don't sweat the stupid stuff, just chill out and wait for your procedures. She decided to flip out. And if she wants my comment, she will ask for it. Now she's high and mighty. Now, when the dirty floor incident happened she started getting agitated. Also whenever soing is not to her exact expectation, she lashes out. She has been rude with just about every staffer except the EKG techs, either being flippant or acting snarky. Also nobody can challenge anything she says or comment. She will not hear it. She knows everything. But helping her to get ahead is great, unless you say soing that does not get her ahead.
So, the study pays ok but not as good as doing less days somewhere else for the same/more $ like Pharmaron where they are doing this study for less days (but the age requirement disqualifies me; but they have another study nearly 3 weeks paying twice as much almost). I am really annoyed having to deal with this personality. I can probably leave here and (No VCT) can screen somewhere else.
I will make about 1/3 of my total now, but I would have to stay two more weeks and deal with Miss Mental Dingbat another several (4) days or so, which, I have no idea when the next time is that she has intensive procedures for the day, into the wee hours.
Also, to be honest, she acts mentally ill. Today when they were giving out meals, hers came before mine. Because of fasting requirements after the dose I cannot eat until 12 noon (breakfast and lunch). So I get two meals together. Ok yesterday, she said "she wants everything she ed". And today, they brought her "everything she ed" so . . . she takes both meals. Then she decides midway through to take exception with soing on her salad and gives it back to the patient assistant. Then half an hour later she is complaining that the patient assistant did not "bring her salad" after she asked . . . half an hour later. And of course, it was not delivered on a silver platter with utensils . . . There is just no rhyme or reason. She's flippant and mentally challenged.
Also on top of that, the last study I did here, I ran into someone that I did a study with at Pharmaron. She was annoyed at the noise from the nurse's station door and smeared lip gloss all over the door hinges so it would not squeak. When I saw her here, I told her I remembered her, and what I remember and right away, she got on the offensive. This points to the type of roommate you are apt to get at this facility lately. I never really had that anywhere else. Although I do not go to some of the very inner city places, etc.
I don't really want to stay. I have had adverse gastric upset frequently, where the other night I not only couldn't sleep due to the constant activity from the other room person procedures, but also had to get up with runs several times until after midnight. I could really do without the added stress on top of the general health matter.
So, I have made $1600. I should be making $4400. If I leave tomorrow I will probably get another $200. I will also possibly not be called back. And I do not think I can get other party "moved". One of the main lab workers was in the hall when the altercation happened and called the coordinator when she said she wanted to speak to one. I think he heard and was already on it, and texted her in advance. If she came, I do not know what the outcome was.
As of now I am hanging out in the public room and not really interested in anything or anyone with mental problems. I never even had this at a study, even with people or bumping into people from schizoprenia studies, etc. in the waiting room, never a whiff of a problem until this last few sets of visits (my lst study was May at the same clinic). This CrayCray child takes the cake.
What would you do. Should I stay or should I go?
|
|
|
Post by fl2014ta on Jul 19, 2021 15:31:45 GMT -5
I was once told I was ineligible for a study when I went to screening and informed the recruiter actually what the study was about and she told me to come in and screen anyway and it would not be a problem. I was dosing with fructose, not any drug, additives, etc. But they did pick it up on VCT and told me I was unable to participate and I had them pay me the full screening which was $200 IIRC. I was allowed to screen again with no problem. I was also told that I could not rescreen after taking cough medicine (forgetfully) on the morning of travel and it came up in my breath. I was told I could not screen for a certain time after. This was all at the same clinic but overall I would say being banned for VCT is highly unusual.
|
|
|
Post by fl2014ta on Jul 7, 2020 23:49:12 GMT -5
I know this thread has not seen a response since May 30 but from the standpoint of a person who lives in central NJ and in a county with currently over 5K cases, and worked in Hackensack and Paramus in the region where one of the first NJ Kung Flu cases was widely news focused at that local hospital there.
I got there by public transit several days a week in the beginning of the outbreak (let's say from Jan through March). I talked to people daily plus to the conductors, train men, bus drivers, etc. I don't know anyone who had the current plague. I never met anyone who had it in their families. This was in the pre mask era. People said they went to the doctor early in the year with soing but at that point, even the doctors didn't know it was a novel virus.
I stood in Targets and Acmes and Walmarts giving out coupons and samples. One young lady said "did you hear about the flu from China?" to me the whole 3 months.
Now . . . I am not saying it did not happen and it's so redundant to bring up the scores of stupid actions on all fronts about this thing but, if you want progress, keep government out of healthcare. (and for God's sake, please, nobody with the last name Cuomo already.)
There was talk of states not reing until there is a vaccine. How do we get one, if not clinical trials? I know the trial at Clinilabs was not for a vaccine. Florida has let CROs and the clinics remain as essential the whole time!
The government should let the medical industry do its best research and not interfere in the truly genius potential that is out there. The problem is that lots of truly genius cures are not found because of the government and the medical community status quo. If you don't believe me, do some research into the end of the Jerry Lewis telethon. They fired him to shut him up.
Just my worm's eye view of things from NJ (where life officially now s*cks).
|
|
|
Post by fl2014ta on Mar 29, 2020 11:35:56 GMT -5
I know. The study page on Hassman's website has just about any type of study you could want listed but it does not mean the study is active. You have to do the Frontage routine with them meaning call every week and see if anything is coming up. It gets tedious but when I get itchy for a study I have to. They usually call if are on their list and they feel you meet the enrollment criteria. It is not often, though. But once I did call and someone said they did have a inpatient study that would be starting and they had to fill the last slot because someone else failed an MRI for whatever reason. I was the only one on that study though there were others going on at the same time. I had no roommate for the two-bed room and it went fast. YMMV
|
|
|
Post by fl2014ta on Mar 17, 2020 16:07:52 GMT -5
well shuckie darn. I was going to get on the screening list for Parexel but it looks like they have VCT
|
|
|
Post by fl2014ta on Mar 17, 2020 15:33:15 GMT -5
Thanks. I'm curious about what it's like there to screen and in house-if the people are actually professional in attitude, phlebotomy skills, if the food is decent, and what the facility is like. There would be significant travel expense for me and I'm not interested in dealing with any more expensive trips that don't result in disclosure/ reasonable questions answered and walking away because those basics are not provided. I don't know what to say overall. I was at much more organized CROs and worse ones as well. Are they professional in attitude?: It depends. The oriental nurse there handled my check-in a couple years ago and was very apt and eager to do the right thing. I just saw her on a screening there last week but it looks like she is part of administration now (not wearing scrubs/uniform). Is everyone like her? No! The other day the front desk peeps were bickering because someone didn't fill out a registration form correctly from on-staff. I almost said soing to the doctors. Are the doctors professional? I think so. The female doctor there did my last screening and was quite thorough but not the point where she found things that she felt would be negatory in the process. But I mentioned I had two toes that were curled due to arthritis and she looked at them, but I am doing that study once stuff clears up with the health concerns of the virus. Phlebotomy skills: I think once when I was on a study there some of the draws were iffy. However, the other day when I got screened, the phlebotomist was fantastic. I say that because I have one good vein in one arm. I have been at other studies where some magic phlebotomists at hospitals found other good veins where I didn't expect them but for this past week, I didn't even feel the blood draw, really. Plus I drank so much I felt like I was growing a hump on my back. ; ) Disclosure: You have ample opportunity to ask questions when they have you sign the consent. I usually don't ask much other than payment schedule and/or what is the most likely chance that I would be dq'd of the screen and the female doctor didn't really give me much insight. My question would be is there a specific range of urea they were looking for or other inflammatory indicators in the blood work that I should prepare myself for because I'm arthritic and feared they would find some inflammatory marker that would dq me. Nope! No real answer. Someone else who was there that I had to meet with said they were mostly looking for dirty urine, things like that. She also said the labs being ed are less intricate than some other lab s she saw for other studies and it turned out to be accurate because my labs came back ok. Now if they were really digging for inflammatory markers, it might not have gone so well. Plus I made sure I did certain things before hand that I don't want to discuss that would mitigate certain things if I DID have inflammation markers in urine or blood. Once you are there the screening goes well with young lab associates being courteous and friendly, it seems. We talked and joked the whole time except when my strip was actually being run for print. I mean I am not sure what you are used to but there are lots of worse places than this right in the same area (Parexel, which I boycotted after one doctor there told me I would NEVER do a study there. So when I used to call for one there, I would ask the study doctor and if it was the snarky one, I would say "no". ) As far as disclosure they are NOT going to tell you the meat in the matter if it's not supposed to be elaborated on for any reason. I was at a screening somewhere that is no longer in operation and was told my (I think) phosphorus was .004 out of range or some ridiculous miniscule number. If I knew that is what they were looking at, I would have taken supplements to counter that. Now a lot of screens will ask if you do take supplements. I only take them when I feel like I am run down such as with taking extra vit c or zinc or soing like that but I do not disclose it. Also I said stuff to other clinics like I once had about 30 years ago a rash from taking soing and now I am barred from there unless I get a doctor to say I do not show any reactions to that or any other therapeutics so just look out for yourself. On another topic there were lots of cancels for screening just last week due to the current situation. So I am sure that helped my chances as well.
|
|
|
Post by fl2014ta on Mar 11, 2020 16:49:01 GMT -5
I had a CRO on my call list having checked their website which did not mention at the time about study applicants from out of the country. However later I checked and they did post that their studies were for citizens. I called their corporate location a few times and finally found many months later that they have an affiliate clinic somewhere in the U.S. but if you are not living there, you cannot go to the CA CRO, only the US one which is somewhere down south (North Carolina, IIRC).
|
|
|
Post by fl2014ta on Mar 11, 2020 16:41:02 GMT -5
Are you mentioning American clinics or up where you are? I am screening tomorrow and so far it's still "go".
|
|
|
Post by fl2014ta on Mar 11, 2020 16:21:52 GMT -5
Last study for me at Hassman was a healthy study with two dosings just prior/during MRI and 5 day stay or soing short. I do not recall signing VCT consent. And as some of the places have the finger scan thingy, Hassman doesn't do that either.
|
|
|
Post by fl2014ta on Mar 11, 2020 16:18:16 GMT -5
It's hard to tell what some of these places are aiming for. I was in a study and dosed with a food substance (that was the study) and told the recruiter, so I got to the screening and on vct they said "you can't be in a study until blahblah date because you were in a study". I told her what that was about and also that I disclosed all this info to the recruiter and she said it was ok to screen but I still got dq'd. I made them pay me the whole screening stipend because of travel. I think some sponsors do not want you to have any activity whatsoever for x amount of time, period. So if their protocol says "has not participated in the last 30 days" that includes screening day. I am suspicious that for the VCT system it doesn't let the sponsor pick "30 days from last dosing" or "30 days from last participation including follow-up" or "cannot screen for 30 days prior to last follow-up visit with another study" I think it just gives defaults like 30 day, 60 day, 90, etc. My disclosure said soing like the disqualification would be for "dosing with any study drug for 60 days prior" but I still got dq'd even though I was not dosing with a drug -- it was fructose! It's probably more about CYA than anything.
|
|